Showing posts with label RRV. Show all posts
Showing posts with label RRV. Show all posts

Wednesday, 13 May 2015

Ross River Virus - my experience

No comments:

What Happened


It started back in February ... it's May now, about 10 weeks I guess.

So all the other blogs, forums and my GP were pretty much on-the-money with their predictions that it would take a minimum of 2~3 months to get over the worst of the symptoms.

The last two weeks have been progressively, noticeably less painful.

It turns out I've been one of well over 3,000 reported cases on the Eastern coast of Australia so-far this year ... more than last year's entire Australia-wide case-load !

The RRV Pain


It seems I had a fairly mild dose compared to some I have now learned-of and even come in contact with.
Some have had to use crutches to get round; some have been bed-ridden for days at a time; One I know of was even hospitalised for a short time!

To this very day it just amazes me how debilitating one tiny mosquito bite from the backyard of a suburban home can impact your life and well being!

There were days that required significant determination to make myself get up and walk.
Walking to the train, train-to-bus, bus-to-work and back again was severely taxing in some of those earlier weeks.
I was blessed to have several great work-mates and my team lead whom on several occasions gave me lifts to the station from work at the end of the day - that was a God-send.

One of the oddities for me was that from day to day (and even hour-to-hour on some days) the joint pain would 'move'.
i.e. one time pain would be bad in say, toes, ankles, knees and fingers; the next it might be mainly knees and elbows but ankles and fingers not-so-bad.

I noticed that for myself, even though I am a chronic "knuckle cracker" (apparently I even do it in my sleep!) my RRV joint pain was in all the finger joints except the actual knuckle joints which I crack!

The most consistently painful part has been rolling off my toes as I walk, and to this day, that is still the part that bothers me.

The single most painful exercise was walking down flights of stairs!

Exercise and Movement


I found that constant light activity was far better the inactivity. If I was inactive for a period, the pain of getting the joints mobile again was quite significant.
Getting up and moving during the night or in the morning was a real challenge in the early part of the recovery.
Even sitting in front of the TV for an hour or two meant a painful "restart" of movement.


Over-doing it on the other hand had a detrimental effect for several subsequent days.

For example, I went on a shopping-centre outting with the family earlier in the recovery. I was on my feet walking for several hours. I paid for that for three days of significantly worse pain.

Mid-way through I decided to mow the lawn myself rather than pay to have someone do it for me.
That proved to be a very dumb choice!

Simple things proved difficult.
Gripping things was difficult and at one point my grip was so weakened that I could not safely pick up plates and dishes single-handed. I simply could not open jars and medicine bottles for a week or two, I just did not have the strength of grip.

Leveraging boots/shoes on/off my feet hurt!

Typing on the computer keyboard for extended periods caused significant wrist and finger pain.

Warm spa baths were wonderfully pain-relieving at times.

Medications and Food


I tried a a variety of food and medication "experiments"

I found that an over-the-counter "Joint Food" product containing amongst other things, Chondroitin, Glucosamine and Selenium, seemed to help the pain BUT consistently caused me to have nose-bleeds !

I found most over-the-counter pain-killers simply didn't ... kill the pain.
Some of the worst days they may have taken the edge off it, but not much more than that.

I actively avoided taking anti-inflammatory drugs to avoid the digestive repercussions.  
 
I found Wine made the pain much worse the next day, whereas spirits did not increase the pain.
In actual fact I found that a glass (or two) of Kahlua and milk at night actually seemed to lessen the pain the following morning.

I was unable to draw direct correlation with any of my normal  fruit, vegetable and meat intake, although I felt there may have been some relationship to particularly fatty or starch-rich foods making pain a little worse within 12 hours.

In Summary 


Now ten weeks on ... its good to feel almost "well" again and be able to move fairly freely most of the time.
It's given me a whole new appreciation for those who have to live with arthritis constantly and I hope I do not have it this bad again in the years ahead!



Saturday, 28 February 2015

Ross River Virus [RRV]

No comments:
See also my experience post

Well this is a divergence from my typical posts about technology related matters, mainly because of current personal experience.
I, along with a growing epidemic number of people within Queensland Australia, have contracted Ross River Virus. 






For an otherwise reasonably healthy and active 57 year old, its been absolutely amazing and eye-opening for me to experience the effect one filthy little dirty-mouthed mosquito can cause!
I've heard all the stories about all the diseases that mosquitoes can cause and paid scant attention to the effects of those diseases.
Working in the back yard of a Brisbane suburb I frequently encounter the little blighters nipping me, even through clothing.
Frequently worse in the evenings between dusk and dark but constantly present even in broad daylight, especially round our trees along the back boundary.
While I'm somewhat cautious of redback and other nasty spiders and dress accordingly, gloves; sleeves; etc; I've been bitten by several nameless spiders while pruning trees with one even causing a patch of my skin to ulcerate ... maybe a white-tail?
I contracted an infection in a leg wound which took many months to heal using Saline and Silver Oxide treatments, at one point threatening my leg as the decay could not be arrested.



That was painful and tedious enough, but  this ... one little mosquito bite with almost no outwardly visible symptoms ... staggering ... literally !
  
I took the week off work to prepare for my daughter's 21st at our place. Cleaning the house and yard; Doing some painting; Turning the back yard into a fairy-light 'special place' with 100's of meters of fairy lights networked high above the yard; Trees all lit up; Volley ball and basketball; Air Hockey; Table Tennis; The hired fridges; Food; Drink; It all came together, looked great and we had a fun night.
The first day of leave ... the Monday was the worst day for the mosquitoes. I got bitten quite a few times throughout he day. I also worked later into the dark several nights that week sustaining bites as I tried to get everything ready for the Saturday night party.
The party comes and goes ... its a great success.

3AM Sunday morning we are seeing the last of the guests off and I notice my voice is a little croaky, someone even commented on it. I also quite suddenly felt rather tired and a bit achy in my feet and legs, but hey! I'd been up and down ladders, mowing lawns, pruning trees, clearing rubbish, moving fridges ... more physical work than I do in a normal week ... guess my age was (grudgingly) starting to show.

Later Sunday morning we had to return a trailer-load of borrowed chairs and tables. With my daughter helping, it was none-the-less quite painful for me ... very odd ... and by the time we unloaded them I felt quite exhausted and my legs from knees down were really aching! I began to think I had picked up something from one of the guests as a couple had withdrawn due to illness ... maybe some 'flu-thing' was going round ... but no-one else in the family was unwell - just me.

Monday I need to go back to work. Getting up, showering, getting into and out of the car was actually painful! I knew something wasn't right.
By the time I walked the 1.2km to work from the train station, my knees, lower legs, ankles and even my toes were screaming at me.
As the day wore on the symptoms got worse, not better.
I was also starting to notice my wrists were quite sore and the 1.2km walk back up the hill to the train became an exercise in sheer mental doggedness of just telling myself I had to climb that hill and had to get to the train, so I could get home. I was in a LOT of pain now.
Every time I bent my knees, rolled off my toes, pivoted my knees or ankles or pushed off as I walked, it was like searing pains in all those joints!

I definitely had the 'flu' ... only ... it was different somehow.
Some years back we all came down with a serious case of 'flu' which first trashed the kids then laid my wife and I up in bed for several days, even requiring assistance looking after the (then young) kids.
This was different.

I called in sick on Tuesday and spent the day feeling sorry for myself.
Unusual for me, I slept for much of the day. Normally even when I'm not well I am up and about to some degree, but not this time.

Tuesday evening I did the "Google self diagnosis" ... always a bit risky because its easy to ms-diagnose, but one of the things which struck me was the similarity to symptoms described for Ross River Fever, also known as Ross River Virus or RRV.
I began thinking about all those bites I had throughout the week leading to the party.

Monday and Tuesday were my worst days initially, I really should NOT have gone to work Monday ... in hindsight.

Wednesday I called our local medical center to see if I could get a Dr's appointment to assess what was going on.
My own GP, a very 'wise' woman, similar to my own age perhaps, was available.
I like her because she does not just 'jump to conclusions. She is thorough, checking facts before prescribing medication. She prefers natural remedies wherever possible but does not hesitate to prescribe when she feels there is sufficient evidence.

She comments how well I was looking and what was I there for.
I run through the symptoms with her, not mentioning my now growing suspicion that Ross River might be involved.
She questions me and does her observational examination and toward the end asks if I noticed if I'd been bitten by anything recently .... da! da!
"Yes" was my answer of course.

She then talked through the details of Ross River Virus noting the slight rash on my arms and the slight possibility of Barmah Forest Virus (BFV)
She pointed out that it has been identified that RRV can be carried by daytime mosquitoes as well as the evening variety previously thought to be the main carriers.
She noted that symptoms can take up to 11~21 days to appear after an infected bite and it can take several weeks for the antibodies to appear in blood tests so it is wise to wait before doing those tests otherwise they can return a negative result.

People recover from RRV - depending on a number of factors as to the speed and totality of recovery.
Typically in healthy people, many of the symptoms will have disappeared after several months, though some severe cases last for a year or more. Symptoms may re-occur from time-to-time.

There is no real treatment for RRV apart from initial rest because of the pain and tiredness, however, as Ross River induces a form of arthritis known as polyarthritis where multiple joints are affected concurrently, lack of activity can worsen the effects, so return to normal activity as soon as possible but "take it easy" because of the pain and tiredness which will be prevalent for some time. "Don't overdo it".

Dr advised that I could take anti-inflammatory medication but that does have digestive side-effects (so I have opted not to use any) and the best bet was the use of something like Paracetamol to lessen the pain. 

Dr also prescribed the rest of the week off and gave me a certificate through to the Friday.
As late as Thursday night I still genuinely thought I would be well enough to go back to work Friday ... but I slept till 11:30 Friday morning ... having slept large portions of Wednesday and Thursday also!
Each day was a little less painful, but with broken nights sleep even come the following Monday I was still in a lot of pain.

The interesting thing for me has been the movement of that pain.
Sometimes worse in wrists, sometimes wrists and knuckles, sometimes just knees and toes, other times knees, toes, ankles and elbows, wrists and knuckles ... you whole body just aches and the joints burn when you use them.
Apparently I've been fortunate because it has not particularly affected my back!
I have a new appreciation for those people who suffer from arthritis!
The weakness of your wrists and fingers to grip and lift things ... most frustrating.

Anyhow ... three weeks on and the end of what has been a "long" week despite the fact I was holed up in a training course for four days of it.
Yesterday was perhaps one of my most pain-filled days apart from that first Monday and Tuesday.
Why? Who knows! It just was.
I slept till midday again today, (Sat) I was just so incredibly tired ... perhaps from the constant pain.

So the purpose for writing this post was to share my experience for anyone else who may be suffering similarly, but also to share findings of my research on managing this disease.

Moderate exercise is better then total rest (as my Dr had suggested)
Avoid alcohol
Selenium is involved in the production of prostaglandins in the body, which regulate inflammation and may reduce inflammation related to arthritis.
Selenium works in close conjunction with vitamin E and can be found in things such as:
  • Brazil nuts, 1 ounce: 543 micrograms
  • Sunflower seeds, ¼ cup: 25 micrograms
  • Egg, 1 large: 16 micrograms
  • Bread, whole wheat, 1 slice: 10 micrograms
Some Articles I found useful include:
Ross_River_disease
Infections_bacterial_and_viral
Ross River Virus Infection - symptoms treatment and prevention
Mosquito Borne Diseases
RRV Fact File
Ross River Joint Pain - explained
huggies.com.au/forum - I just found out I have Ross River Virus